Thrilled to announce the formation of an international MRKH effort! We can’t wait to start changing lives globally!
The Mission of Global MRKH is to improve the health and wellbeing for all who are touched by MRKH. Global MRKH is an international collective of Health Care Specialists, Researchers and Advocacy groups dedicated to improving patient care, biomedical research and the psychosocial needs of affected individuals and family members.
The Condition called Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome manifests between weeks 5 to 18 of gestation and results in incomplete Müllerian (female reproductive tract) development. Clinically, MRKH is often diagnosed as Mullerian Aplasia/Agenesis, Uterine Agenesis, Vaginal Agenesis and/or congenital absence of uterus and vagina (CAUV). Aplasia means failure of an organ to develop or functional normally, while Agenesis means failure of an organ to develop during embryogenesis. In some countries, MRKH is also called Rokitansky Syndrome, Küster-Hauser Syndrome or Rokitansky-Küster-Hauser Syndrome.
The Founders of the Global MRKH are Alison Hensley, Amy C. Lossie, PhD, Christina Ruth and Jaqi Quinlan. The founders act as…
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